Toddler Tantrums. Toddler Woes?

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I’ve seen several articles about toddler fits and tantrums recently.  I even read a few of them.  I’m sure many of you know of them, and many of you have commented for/against the scientific research.

I have one simple question though.  Why are we psychoanalyzing something that is so apparently, to me, attributed to communication failure?  I often see Kieran (my 18 month old) go into one of his tantrums after lacking to convey, to his level of expectation, a specific want or need.  He’ll usually point and grunt/meep, or have something in his hand he shouldn’t, then after he doesn’t get his way or the item is taken away, he’ll tiny tantrum.

Granted, his situation is unique in a way.  He tantrums over being too overheated, itchy or exposed to cold air (I know, there’s a temperature window).  However, beyond those factors, and maybe those are the factors that make me acutely aware, he’s simply not able to tell me what he wants.

I know there are signs.  I don’t think there are too many parents that can’t pick up on a potential tantrum.  I think by and large the signs are readable and predictable.  Plus, they are often a result of frustration, unless the child has other specific problems.

In short, considering all of the recent talk about the topic, our “keys” have been loving reassurance and patience.

“Bizarre” Parenting with Jeremy and Kieran Hill

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“Bizarre” stories of the past 18 months.

- Of course I have to reference the first time we realized the blood condition Kieran has.  We went to doctor after doctor, trying to decipher the pink and red splotches all over his body.  One doctor would make one diagnosis, and the next would make a completely different one.  Luckily we finally found one with answers.

- The utensil drop.  It was the first visual connection we made, Kieran and I.  He looked me square in the eyes, I said “don’t drop it.” and he did.

- Phineas and Ferb.  The first episode Kieran saw was a musical one.  He froze, not to reply to any input other than that TV.  I turned it off, and he threw a tantrum.

- Bananas.  Does every child have the propensity for eating 2-3 a day?  Sheesh.

- Kieran insists every morning, even at 18 months, that his shoes go on the wrong feet.

- Hide and seek continue to be a favorite game, it just gets more elaborate.  I have to try and fool him these days.

- Magic tricks are awesome.  To us both.

Keeping Children Innocent… You Can’t Unsay These Things.

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Santa and his bro

I caught wind of an interesting article this morning.  A teacher at an elementary school in Nanuet, New York tells her second grade class that Santa isn’t real.

First off, let me say that I love Santa.  He and I are bros.  We go way back.

I’ve puzzled over whether or not I want to propagate the Santa myth with my son.  I have an alarmingly vivid memory of the very moment I learned Santa was in fact, a lie.  I was about 7 and in front of a convenience store in the car.  My Mom came out with a bag of groceries and got in the vehicle.  The tension was palpable as I asked “the question” and learned the horrible truth.

It’s been asserted to me that part of the reason the Santa stories are told is to put a bit of magic into the holiday, and support a child’s imagination.  I can understand and respect that, but I continually get hung up on the revelation point that eventually has to come.

I hear parents all the time talking about how they bring up topics with their children.  From child birth, to sex, death, Santa, and it always sounds difficult.  Some folks seem to let the topic come up in school or with the child’s friends before they tackle it.  I think that’s a bad idea.

You wind up in situations like the teacher who told her class about Santa not being real.  Whereas someone might be inclined to reference him as the “spirit of Christmas” after the child is told about the farce, she didn’t do anything like that (as I can tell from what was reported).

I’m a big supporter of separation of opinion and education, even though sometimes they blend together.  I apply this absolutely when it comes to swaying religious or political beliefs.  If a kid asks, it’s one thing, but don’t weed into the lesson some kind of agenda.  If it’s a Christian school, it’s expected.  If you’re not in America, it might be expected.  However, in this country, respect our freedom to believe what we want and furthermore, respect my parenthood.

If I’m not raising my son properly, and you have the inclination to bring it up to me, just do it.  I might punch you in the nose if the allegations are pointed and unreasonable, but even if I agree with you regarding your opinions, he doesn’t need them asserted to him.

These kids remember the things they’re told.  I plan on raising my son with the understanding of the beliefs I have, and the understanding of how okay it is for him to ask questions, doubt, or embrace.

Be careful of what is said to children.  It lingers longer than you know.

In fact, next year, I’m going to tell the Easter Bunny to ignore your colored eggs.

Allergies and Fear, Finding a Balance

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Heavy Downpour

Little Mister Kieran decided he wanted to jaunt out into the yard yesterday evening.  That’s not a problem, except for the two inches of standing water on our off kilter porch.  He’s still not walking so I had to intervene as to avoid him absorbing an overly sufficient amount of water into this clothing.

The outdoors and the total of the Hill family are nemeses any time of year besides late fall and winter.  We are acutely aware of the lovely denizens of the sky and ground.  Namely, the bee, the wasp and the red/biting ant are our favorites.  They provide us with enough pause that we simply choose not to take Kieran outside during those times.  The reason being, those insects, if taking an aggressive liking toward my son can and maybe will incite an anaphylactic reaction thanks to his Mastocytosis.

The current season, late fall/early winter has left me pondering those decisions.  I believe we may be keeping Little Bit from experiencing the natural world to some extent.

I found myself reflecting on our experiences with foods (which can cause anaphylaxis as well).

We’ve found that if we simply instruct his care providers to not give him foods we have disapproved, he will not have a reaction.  It’s as simple as that.  What we know hurts him, we avoid.  The same needs to apply to the outdoors!  I’m quickly developing a firm belief  that if someone pays attention to what’s going on around him, he’ll be fine.  He always has his Epinephrine pen around if it’s ever needed, too.  Though, I hope we’ll never have to use it.

Those denizens of the stinging world have specific criteria which can be tracked visually, and or with a well aimed spray can as well.  While Kieran is climbing a ladder to a slide, daddy can covertly squish anything with a stinger with little regard to the environment (sorry, insect advocates).

If anyone reading this happens to know someone with a severe allergy, please don’t protect them entirely from situations which could be positive or beneficial in some way.  Pay attention, take precautions, or instruct those responsible to pay attention and take the appropriate measures regarding the factors that may influence the condition.

Of course there are exceptions, whom may have significant debilitations, but perhaps the outside could be brought to them while in their safe spots?  Lets not keep our special children under layers of plastic or covered in gallons of bug spray and away from the outside world which they will inevitably have to eventually interact with.  Lets allow them to be children as often as we can.

Learning Opportunities and Pokes in the Eye, You and your Child.

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Kieran and the Christmas Tree

Kieran locked eyes with me, one of his hands with its inexplicably firm grip fixed onto my knee, while the other had my shirt by the lapel.  We were both sitting on the floor next to the coffee table, having just enjoyed a morning snack of bananas and grapes.

There were still smears of fruit on his cheek as I watched the gears in his brain grinding, facing this challenge of climbing Mt. Daddy.  He planted the heel of one foot firmly onto my thigh as he moved the hand he had on my knee to my shoulder.  His other foot followed the first onto my lap and he straightened his legs till he was standing, perched upon my folded legs.

“King of the Jeremy!”  I squealed in delight, throwing my hands up, which vaulted him into silly laughter.  I rolled onto my back, easing the still giggling boy onto my chest.

“Where’s your nose?”  Kieran promptly touched the tip of his nose.  “Daddy’s ear?”  He reached over and started to poke me in the eye.  “Ear, Kieran, see?”  I rubbed my ear with one hand and his with my other, deftly avoiding the tiny cornea-scratching fingernail.

It floors me at what age children start to identify and learn these things.  Kieran can’t vocalize half of what we talk about but he is still receiving all of this input.  He knows what a hat is and where it goes.  He knows how to put lotion on himself, how to identify several animals, and the list goes on.

A year ago I was told that something like this would be the case and I thought to myself that for sure, people are exaggerating.  I stand boldly and loudly corrected.  These children aren’t even just like sponges, they’re like that “wonder fabric” material you wipe down cars with, similar to a sponge but a hundred times more absorbent.

We’re going to move onto shapes and colors more fervently next.  Then onto VBScript I think.  I don’t want to push him too hard, after all.

I’m inclined to urge fathers out there to really take the time and connect with your little ones.  Don’t adopt the despondent ‘I work every day and am tired at night’ mentality.  If that’s your attitude, go to sleep earlier.  Eat a healthier diet.  Man up for your kiddo.  I’m already reminiscing of the days when I held him against my chest as a tiny tot, and looking forward to our first Frisbee tournament.

A Father, His Wife’s Miscarriage and a Lost Unborn Child

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(There is candor in this article.  You have been warned.)

I am writing this article to give a father’s perspective on a situation that by and large is very difficult for most men to emotionalize…

Women, and women alone, bear our children.  Men; fathers, brothers, friends, associates, can never understand the full implications of childbearing.

This is an indisputable fact that has been true for humans since mankind was an inkling in God’s mind.  Pregnancy:  Along with the physical implications, emotional stress and professional distress come the impacts of all types of events in all of our lives.

Many men like to think that the emotional side of the entire process is primarily female based and oriented.  We like to think that we can detach ourselves to help mitigate the hormonal roller coaster and estrogen infused rage or depressions (the extremities of course).  Men are fixers, try to be the foundation, and go out of our way to comment and give advice and support to others whether it’s asked for or not.

If you happen to be one of the folks who read or commented on my wife’s blog post, Always Trust Your Mommy Instincts, I hope she helped to explain something that she searched for weeks and weeks to find other mothers that were willing to talk about these things, but ultimately she failed and decided, after healing, to write an article of her own.  Along with the hope that I can propagate her story, I’d like to give my perspective so hopefully fathers to be out there (whether first, second, or fortieth), can relate.

In case you haven’t read her article, I recommend it.  It is regarding an experience we had together, losing an unborn child.

I will begin.  Off with the shroud.  The following are events as I emotionally recollect them:

August, Weekend of the 27th, 2011

My wife Harmony expressed a concern about some brown discharge she’d experienced vaginally during a few bathroom trips that weekend.  I remember being largely indifferent regarding these events.  I chalked them up to her propensity for dramatic rhetoric.  I reassured her that “It’s fine, that is normal during the first trimester of pregnancy” along with a smile and a stroke of her hair.

She wasn’t convinced.  She insisted that the discharge was in excess when compared to her pregnancy with Kieran (our first son).  I inquired as to how much in excess and she couldn’t give me a measurement.  So, I was back to dismissal.

I turned and asked her just now if she remembers how much more and she expressed that it was easily “A fingers worth during the first pregnancy, a palms worth during the second.”  That doesn’t sound like much relative to what bleeding/spotting could be, but is easily 300% more comparatively.  This is all after the emotion, when we have the facts, when the perspectives aren’t skewed.

August 29, 2011

Pretext… We had sex on the morning of Monday the 29th.  No excessive vigor, just normal.

The morning of the 29th, when Harmony checked herself, she noticed more discharge.  Granted, we’d just done our husband-wife dance, but something she carried on her shoulders became aware to me.  I could see this affecting her more than it normally would so I went along with the notion to contact a professional.  She called the doctor’s office but was told not to worry unless the discharge was actual blood (red).

Well, that night she came home and after a bit, went to the bathroom, and informed me that she discovered “actual blood” on her toilet paper.

We went through two days of this cycle of “there’s blood but…”  Most of the “but” was instigated by me, her husband.  I denied her the possibility of it being anything but random circumstance.  I denied that it could be anything more than the typical pregnancy misgivings.

Again, the next night, she had the same occurrence.  I, the husband, kicked immediately into explanation mode.  I took the form of the wise old oak tree advising the apple tree on how to deal with apples budding from its branches. It would, I remember it distinctly “all work out just fine, don’t worry”.

As you may see on her blog, she called her wizened principle (boss) who told her to follow her “mommy instincts”.

If I’m to be honest, I resented the move.  She was placing faith in someone other than her husband, whom she trusts and relies on for care and love.  As the situation unfolded, I felt pushed aside and jaded about the whole thing.  In all honesty I wasn’t sure why she didn’t trust me on this point when we had such a functional, communicative relationship otherwise.

The next several events, Harmony going to her physician’s PA, learning that the previous development they’d seen in the fetus resulted subsequently in the realization based on her waning hormone levels that there was no possible way the pregnancy would be viable.

I treated the last few sentences in much the same way that I treated the previous news…

My wife was pained.  I am the fixer.  I am responsible for her emotional wellbeing.  I charged myself with those responsibilities when I married her.  I will not hurt.  I will not bleed.  I will not thrash.  I will compromise myself. I will compensate for her deficiency, try to make her whole through words.  I will force her to reason through these hindering emotions.

Mostly, I denied reality.  I remember a moment thinking, “How do hormone levels prove this?  Show me the rationale.  Show me the science.”  I called her doctor’s office and got the PA on the phone and asked plain as day “Are you sure these facts are definitive and undeniable?  I want you to tell me straight, do not sugar coat or beat around the bush with me.”  The answer was “yes.”

My child was dead.  He/she was still in my wife.  There was a medication which would instigate a period-like event, supposedly to help her shed the dead fetus, and another medication which could potentially make her bleed out, but would “complete the process.”  We were given a choice.

I demanded that Harmony not consider the dangerous medication, something I don’t normally do (flat out demands, that is).  She went instead with Cytotec, a less pervasive med.  We dealt with that for a week.  I had to take a slotted spoon into the bathroom each time she passed tissue to try and scoop my child out of its porcelain tomb.  Eventually, the medical professionals determined that they needed to perform a D&C on her to “clean her out” as they say.

She went in for the surgery with the knowledge that it goes well 99% of the time, but there was a slight chance of the necessity of an emergency hysterectomy.

I tell you, I knew at some point around this time that the process by which we would bring her back to level playing ground emotionally was going to be long and drawn out.

It subsided in much the same way it began.  A loving mother and father hoping that their second conceived child would miraculously reappear in her mother’s womb, but without any child between them except…

Kieran.  I believe wholeheartedly that he helped her through some of this.  His bright smile and eyes, even despite his condition, made her laugh and giggle with him during even some of the most difficult times.

To fathers out there who may not be able or want to verbalize/write their stories, rest assured that the emotion may be concealed by a wall, but it is there.

What did this father go through when a baby died that I never met?  I can sum up my experience…

To my wife and to my lovely child, who died after his heart did beat, but not before she was loved

When I cry, she will not see it.
When I mourn, she will not feel it.
When I find the pit of despair, I will not share it.
When I cry for God, she will not hear it.

My wife, There is no parallel to my love
My son, I love you undeniably
My unborn son, I love you decidedly
My lost daughter, you are so lovely
I love you all.

I have nothing more than I can feel
As your father, I’m one who fought the emotion
As your husband, my heart is ripped from my chest
I hand it to you to replace yours.
Please replace yours,
I can never know the whole of your loss
but I know that a whole heart is at least a piece of what is missing.

Kieran Crawled!

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I haven’t posted about my lovely child in months.  I feel the need to provide a brief update.

Kieran crawled this weekend.  For the first time Saturday, he dropped to all fours (after butt scooting for months!) and took a few strides on hand and knee.  Mom and dad were so excited that all three of us jaunted around the living room floor, laughing and cooing at each other.

He’s cruising along furniture, crawling (yay!) and standing briefly on his own.  He is thiiiiiiiiiissss close to walking.  He’s almost 18 months, and his Ped wants him to see a physical therapist if he reaches 18mo and isn’t at least standing for long periods without support.  While I definitely want him to have the help he needs, I also want him to be successful and have the best start at his 1.5yr mark.

I mean, he’s practically in college!

Next I need to build an infantwalk-inator.  (Phineas and Ferb fans?  Anyone?)

Why a Month Passes for 2BabyDad.

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I was on a roll reporting about Kieran and his NIH experience.  I plan on doing so in the weeks to come but something has happened in the past few weeks that has isolated my attention (and subsequently caused a lack of posts).

My lovely wife was expecting our second child.  In fact, I reserved these domains (2babydad, 2babymom) for us to report our experiences and talk about Kieran’s life and medical experiences.  If you take a look at her blog, http://www.2babymom.com, you will read that there was a miscarriage and we have lost our second baby.

I am only briefly posting about this because I have resolved to not let the loss impact our love of life and my desire to inform.  This decision is of course after weeks of worry and emotion.  We have sidestepped the possibility of hysterectomy. I hope that my wife’s article will help many many women moving forward.

More to come from the NIH experience soon, and thank you for reading.

NIH Journey – Alternate Post – I love playing with toys!

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Kieran NIH Pediatric Play Room

I wanted to post a picture at the NIH, but don’t have time for a lengthy narrative following the flight.  It will come!  For now, here is a cute pic of Kieran playing with toys in the Pediatric department of the NIH in the middle of his clinical day.  Thanks!  More to come!

NIH Journey – Post 2 – To Atlanta, Georgia, and (eventually) Beyond!

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…Continued from Post 1…

The overhead call sounded, “…those needing extra time may present their boarding passes now…”

Kieran was busy scooting around the Tulsa International Airport terminal  waiting room.  Nearby couples and families were chuckling as he would plant his heels and pull his bottom along, scooting from window, to chair, to “sweet potato flavored poof” bag.

TIA Butt Scoot

TIA Butt Scoot

I spoke with one older couple, “I’ve never seen that before” regarding Kieran’s chosen form of locomotion, I remarked that it was something unseen to our friends and families as well.  This kiddo wanted to move, and being on his stomach was uncomfortable due to what we (now, understanding the details of Systemic Mastocytosis) theorize was inflammation of his liver and spleen resulting from his condition, so instead he found a way to get around.  This was was the now nestled in infamy, Butt Scoot. (Double click the image on the linked page and it should play!)

For those who might wonder, the organ inflammation was a likely systemic byproduct early in Kieran’s life as a result of severe mast cell overproduction.  Now, at 14 months, he eagerly flops onto his tummy without discomfort, thus catching his gross motor development up!  Good news!

Kieran has been weened off the bottle for the most part.  I intentionally kept him partially reliant specifically anticipating the flight and ear pressure issues resulting.  That wound up being a saving grace.  I could not get him to continually draw from a sippy cup during takeoff (or approach, later, for that matter) but the bottle offered a continual draw orally, which, like you or I drinking soda through a tiny straw, kept the muscle repetition we needed to keep the Eustachian tubes open and a balance maintained.  After he calmed, once we were in flight I was able to get a few photo shots with him and his mommy:

TIA Kieran and Mom

TIA Kieran and Mom

So, we made it through the ensuing takeoff.  I was presented with several hours between Tulsa, Oklahoma and Atlanta, Georgia in which to entertain and divert a 14 month old child.  The next post will result in touchdown in Atlanta, but I have a few significant points to make regarding travel to and from these locations.  A few things I hope to touch on regarding the entire trip are diversionary tactics, reactionary tactics and alternative foci for young children, especially one with a skin/blood/bone condition.  The tactics change from one leg of the journey to the next.  Sounds like an episode of CSI?  Perhaps…  The series will continue…  For now, another awesome picture of doodle…er…. Kieran at the Children’s Inn in the NIH… :)